Motor neurone disease (MND) causes people to have some difficulties with everyday activities. Household items can become difficult or impossible to use. However, a range of devices and aids is available to make life easier, as well as some common sense approaches to improving comfort around the home.
Chairs for people with MND
The support provided by a chair, as well as its height and stability, are important for people with MND. It will help if you:
- Make a chair more comfortable by using cushions or a headrest.
- Use firm, upright armchairs.
- Use chair blocks to raise the height of an existing chair.
- Use manual or electrically operated riser or recliner chairs.
- Use pressure-relief cushions.
- Ask an occupational therapist or physiotherapist for advice.
Beds for people with MND
Comfort and manoeuvrability in bed can be a major problem. Try:
- bed blocks to raise the height of the bed and make it easier to get in and out
- a monkey pole, backrest, posture pillows or sheepskins
- mattress elevators to raise a person from the lying to the sitting position
- a deep mattress or other specialist mattresses such as airbeds, waterbeds or net beds
- an adjustable bed – manual or electric
- a mobile or overhead hoist. A careful assessment by a therapist is vital to make sure that the correct hoist is chosen for the comfort and safety of both the person with MND and their carer.
Working height for people with MND
Tasks such as eating or writing become easier if your forearms are supported at a suitable working height. Try using:
- an adjustable cantilever table or a box (cut to the required height) placed on the table
- a bed tray (with small legs) on the table
- forearm supports, or mobile arm supports (attached to a wheelchair).
Use of tools and utensils for people with MND
To accommodate weakened hand muscles:
- Enlarge the handles of items like cutlery and toothbrushes by using epoxy resin to mould to the shape required or rubber tubing to slip over handles.
- Use a strap with a pocket that fits across the palm of your hand.
- Choose lightweight items.
- Ask your occupational therapist for advice.
Light and power for people with MND
You can improve access if you:
- install rocker or touch pad switches instead of conventional switches
- bring sockets up to a convenient height by using extension leads.
Alarms, intercoms and computers
Room-to-room communication and alarm calls can be arranged with:
- simple units such as plug-in baby alarms or sophisticated units that incorporate radio, video, music, fire and burglar alarms
- telephone systems that will automatically contact emergency services, family members or friends
- beepers that can be adapted to call for assistance from both inside and outside the house
- a buzzer or doorbell wired to a light touch switch or pressure pad
- alarms and computers that can often be operated by remote control
- micro-switches that can be triggered by movement in any part of the body.
Electrical devices for people with MND
You can buy electrical devices that open and close doors, windows and curtains, or turn the radio or TV on and off. All these devices help maintain independence, but it may be easier and cheaper to use readily available devices such as plug-in timers to control heaters or switch on lights. Ask your occupational therapist for advice.
Doorknobs and locks for people with MND
It often helps to provide extra leverage on knobs and keys by:
- using a multipurpose knob turner
- installing larger knobs on door locks
- enlarging key grips.
Telephones for people with MND
There are many telephone devices available. You could:
- Use a mobile telephone or smartphone, which are lightweight and easy to operate.
- Use switch adaptable mobile phones.
- Use a hands-free telephone so you can talk without lifting the handset.
- Use a telephone with the ability to store phone numbers that can be dialled by pressing just one button.
- Use the Telstra Disability Equipment Program, which may be able to provide you with a special telephone that suit your needs.
Carrying tasks for people with MND
With weakened muscles, carrying things can be a problem. Try using:
- an apron with big pockets or a bag slung diagonally over the shoulder or round the waist
- a tray with non-slip surfaces
- purpose-built, stable trolleys.
Where to get help
- Your doctor
- Motor Neurone Disease Association of Victoria Tel. (03) 9830 2122 or 1800 806 632
- Specialists such as neurologists, speech therapists, occupational therapists, physiotherapists and psychologists (your doctor can refer you)
Things to remember
- As MND progresses, the person may find that they have difficulty with everyday items in their home.
- The right aids and equipment can help people with MND retain some independence and quality of life in their own homes.
- There are professionals who can help identify the appropriate resources, aids, equipment and support.
This page has been produced in consultation with and approved by:
Motor Neurone Disease Association of Victoria
Page content currently being reviewed.
Content on this website is provided for education and information purposes only. Information about a therapy, service, product or treatment does not imply endorsement and is not intended to replace advice from your doctor or other registered health professional. Content has been prepared for Victorian residents and wider Australian audiences, and was accurate at the time of publication. Readers should note that, over time, currency and completeness of the information may change. All users are urged to always seek advice from a registered health care professional for diagnosis and answers to their medical questions.