Women living with human immunodeficiency virus (HIV) in Australia, or women whose partner is HIV-positive, may wish to have children but feel concerned about the risk of transmission of the virus to themselves (if their partner is HIV-positive) or to the baby.
If you are living with HIV or your partner is HIV-positive, you can plan pregnancy or explore other ways to have children, depending on your wishes.
Talk with an HIV specialist doctor before you become pregnant. The right specialised treatment and medical care can reduce the risk of passing HIV to your unborn child to less than two per cent. In the years 2013 to 2015 the mother-to-unborn-child HIV transmission rate in Australia was zero per cent.
Without treatment, up to 35 per cent of babies born to women living with HIV will contract the virus.
What is HIV and how is it spread?
HIV is a virus that attacks and weakens the immune system over time. This means that someone with HIV who is not receiving treatment can be more susceptible to infection and disease.
Treatments for HIV in Australia today have advanced substantially and AIDS is not seen in those with access to treatment. Only untreated HIV would lead to acquired immune deficiency syndrome (AIDS).
HIV is found in blood, semen, pre-ejaculate, rectal mucus, vaginal fluids and in breastmilk. The virus can pass directly across the lining of the vagina or rectum during sex. It can also enter the bloodstream directly if contaminated injecting or piercing equipment is used.
In Australia, HIV is most commonly spread through unprotected anal or vaginal intercourse with a person who has HIV. HIV can also be passed from mother to baby during pregnancy, birth or breastfeeding. All other body fluids (such as sweat, saliva, urine and tears) do not carry the HIV virus, unless they contain blood.
Newborns of women with HIV in Australia must be formula fed, due to the high risk of transmission through breastmilk.
HIV and planning a family
Deciding to have a baby is a big decision for anyone, but for a woman living with HIV, or who has a male partner with HIV, the decision and planning requires extra considerations.
If you are in this situation, seek professional advice and find out as much as you can before you become pregnant. It may help to talk the issues through with:
- the doctor who is treating you
- your HIV specialist, an obstetrician or family planning specialist
- the Chronic Viral Illness (CVI) Clinic – this clinic at The Royal Women’s Hospital in Melbourne provides assisted reproductive technology options for discordant couples wanting to conceive.
- a counsellor who specialises in this area.
Concerns HIV-positive mothers may have
Medical advances have made the risk of HIV transmission to a baby very low, but for women with HIV, becoming a mother can bring with it unique concerns, such as:
- avoiding passing on HIV to their baby after birth – for example, mothers who are HIV positive will not be able to breastfeed their baby
- feeling grief that they will not be able breastfeed
- feeling concerned about the safety of the treatment they will take during pregnancy and that which will be given to their baby after birth
- worrying that transmission prevention strategies will make it obvious to others that they have HIV – this is especially true for women from countries where HIV is common
- feeling that the whole experience of becoming a mother will be overshadowed by managing the risk of HIV
- learning about how to look after themselves in pregnancy and how to keep their baby safe – this is more complicated for a woman living with HIV, and can add stress during the pregnancy and afterwards
- worrying about whether pregnancy might worsen the progress of their HIV – there is no evidence that pregnancy does this
- worrying about whether HIV may cause the baby to have any birth defects – HIV does not cause birth defects.
There is excellent support for women living with HIV in Victoria who are considering pregnancy. See the contacts at the end of this fact sheet for more information.
Tell your health professional about your HIV status
It is important to tell your doctor, obstetrician or midwife about your HIV status. This helps your health professional to offer you treatment both before and during pregnancy that is suitable and safe. It also allows them to take steps to minimise the risk of accidental transmission during any medical procedures.
Testing positive for HIV during pregnancy
HIV testing of women in early pregnancy is now routine in Australia. Testing should be done with your consent and is offered during your first set of antenatal tests.
If you receive a positive test result, be reassured that many people with HIV live a full and active life, and that the risk of HIV transmission to your child is very low, given appropriate treatment.
Support is available through various organisations, including:
HIV and getting pregnant
In 2015, 25,131 people were living with HIV infection in Australia, including approximately 2,814 women. In some cases, one partner has HIV and the other does not. This is sometimes referred to as ‘serodiscordance’. Relationship issues such as sex and having children are complicated for serodiscordant couples, and counselling may be helpful.
In Victoria, referral to the Chronic Viral Illness (CVI) Clinic at the Royal Women’s Hospital can be made to discuss your options with an HIV physician who specialises in reproductive health. This clinic specialises in helping serodiscordant couples to conceive safely.
Recent studies have shown that, where one partner is HIV positive and the other HIV negative, antiretroviral therapy (also known as ART or ARVs) can be very effective at preventing HIV transmission from one partner to the other during sex, provided:
- neither partner has another sexually transmissible infection, and
- the positive partner has had an undetectable viral load for over six months, and
- they have been getting tested regularly (three monthly).
Timing of sex to coincide with ovulation can be discussed with a healthcare provider to increase the chance of getting pregnant while reducing the risk of passing on the virus.
With the most recent advancements in Pre Exposure Prophylaxis (PrEP) and Post Exposure Prophylaxis (PEP), trials have found that HIV transmission to a negative partner is unlikely if a stable undetectable load is maintained. Speak to your treating doctor if you would like to explore these newer prevention drugs.
Getting pregnant when the mother has HIV
Some women with HIV who want to become pregnant to their HIV-negative male partners choose to use artificial insemination at home using their partner’s semen, rather than unprotected sex. Speak to your HIV doctor or fertility specialist to find out what options you and your partner have.
You can improve your chances of becoming pregnant by artificially inseminating at the most fertile time of your menstrual cycle. Learning about fertility awareness will help you to know when you are most likely to conceive.
A doctor, sexual health nurse, or fertility specialist can help you learn to recognise your fertile time of the month.
Getting pregnant when the father has HIV
If the father has HIV, a procedure called ‘sperm washing’ can be used when trying to get pregnant. During this procedure a machine separates sperm cells (which don’t carry HIV) from the seminal fluid, which can carry the virus.
The washed sperm is then used to fertilise the woman’s egg using a special catheter inserted into the uterus.
In vitro fertilisation (IVF) may also be an option
Living with HIV and being pregnant
Talk to your doctor about your treatment. It is important to know that not all antiretroviral medications are safe during pregnancy, or some small treatment changes may be required.
Pregnancy can be relatively safe for both a mother living with HIV and her baby – as long as HIV transmission reduction strategies are followed.
Ways to reduce the risk of transmission include:
- for the woman to be taking antiretroviral medications (ARVs) before conception to reduce her viral load (the amount of virus in the fluids of her body) as much as possible – the lower the viral load, the lower the risk of transmission to the unborn child
- for the woman to start receiving antiretroviral HIV treatment as soon as she is diagnosed with HIV during pregnancy (this also helps to optimise her health).
Being on treatment and having a low viral load improves the mother’s immune system and health throughout the pregnancy. HIV-positive pregnancy today, with specialised care, is the same as HIV-negative pregnancy.
Pregnancy does not make HIV progress any faster.
Living with HIV and giving birth
Being on treatment and under the medical care of their HIV specialist and obstetrician, today in Australia women with HIV can give birth vaginally or by caesarean section. The birthing plan options will be based on the woman’s individual health needs.
Ways to reduce mother-to-child HIV transmission during birth include:
- avoiding procedures in labour that may scratch or cut the baby’s skin, wherever possible (for example, fetal scalp monitoring)
- giving antiretroviral medications to the newborn for around four weeks after birth.
Caesarean delivery is recommended if:
- the woman has a detectable viral load, particularly if it is over 1000
- the woman is not taking antiretroviral treatment
- there are obstetric delivery complications such as the baby being in the breech position
- there are other medical illness complications.
HIV after the birth
Mothers who are HIV positive should formula feed their babies, as breast milk can contain and therefore transmit HIV.
Women can feel pressured to breastfeed and some women can feel grief about not being able to breastfeed. It is important that women living with HIV have the opportunity to speak to supportive counsellors or other positive women who can give helpful advice and support.
Women living with HIV do not need to disclose their HIV status or justify their reason for not breastfeeding to every nurse, midwife, lactation consultant or doula, or during breast feeding education.
All babies born to women living with HIV will receive antiretroviral treatment for a four to six week period after birth. This treatment is known as PEP or Post Exposure Prophylaxis and it significantly decreases the chance of the infant acquiring HIV.
All babies born to women living with HIV will be regularly tested for HIV, usually until they are 18 months old. Testing of the baby will involve a combination of antibody and PCR (polymerase chain reaction) tests.
It is important that babies exposed to antiretroviral medication continue to be monitored. They are generally considered HIV negative by three months of age if not breastfed.
Babies born to women with HIV in Victoria are referred for specialised paediatric support, usually at either The Royal Children’s Hospital or Monash Medical Centre.
With the excellent health care available in Victoria, the mother-to-child HIV transmission rate is almost zero. However, in the very rare case that your baby may be HIV positive, there are many supportive professionals and organisations that can help and who know it may be a distressing time for you.
You can expect welcoming, non-judgemental and compassionate care for yourself and your baby.
Medical care for babies with HIV is highly specialised. Early diagnosis means that a baby can begin effective treatment and have every chance for a long, healthy life.
Other ways for women living with HIV to have children
If you decide not to get pregnant because you or your partner have HIV, there are other ways in which you can become a parent. Options such as foster care, permanent care and adoption may also be explored.
Surrogacy is an option for some women, however it is complex and has very specific Victorian guidelines.
Managing illness as a parent
Although with medical advances people living with HIV today live full, healthy lives, HIV in some people can lead to illness at some time in the future. As with any longer-term illness, this can impact on a person’s ability to earn an income, manage a household or raise children.
Any kind of chronic illness of one partner can be a challenge and sometimes families may need extra support. There are many helpful, supportive organisations that can assist you.
Where to get help