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  • Porphyria is the name for a group of rare conditions that involve a molecule called ‘heme’ or ‘haem’.
  • Heme contains iron and is used in metabolic processes throughout the body.
  • Porphyria occurs when the body cannot convert compounds called ‘porphyrins’ into heme.
  • Porphyria can affect the skin, nervous system, gastrointestinal system or all of these, depending on the specific type. 
  • Currently, there is no cure, but medical treatment and lifestyle changes can usually manage the symptoms.

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Reviewed on: 01-10-2019