Jane talks about her story as a carer when transitioning to the National Disability Insurance Scheme (NDIS).
My name is Jayne Crouch and I’m a mother of five.
My youngest two children both have disabilities.
My daughter, Lindy, who is 22, has Downs Syndrome and my son, Josh, who is just about 17, is on the Autism spectrum.
I also have a husband who had a stroke which has left him with left-side weakness and some brain deficits.
So ours has now become an interesting household where we have multiple disabilities.
When I started with the NDIS I was pretty institutionalised in my way of thinking, for Lindy particularly. Lindy is 22 and now she’s being recognised as an adult, an independent adult, living within the family home just as other 22 year-olds do. Before that she was getting frustrated. She didn’t want mum taking her everywhere and doing everything with her so she was starting to push me away. ‘I don’t need you, I don’t want you’ – but she had to have me.
Where now, as she has a young woman take her to gym and swim and to go out and do things with other people, mum’s falling back into the natural role of being a mother and nurturer, not necessarily the person that you’re with 24 hours-a-day. So she’s able to be not as frustrated. And so as she is, she’s reaching that next stage of child and mother relationship which my other children have done where you start to be more of an equal and a friend.
Josh has been able to access the behaviour intervention and as he’s started to become responsible for his own behaviour, he’s been able to move much more into that young man, young adulthood that he needed to, and he’s quite proud of himself.
Daryl - as he’s got his scooter he’s been able to go out in the community more, he’s felt much more independent and less – ‘oh, I’m stuck at home with my wife’.
And he’s been able to take responsibility for some of the things that he used to do that he was prevented to do like going to the pharmacy and getting his own medication, taking Lindy down to have a swim lesson and things like that.
So, we’re much more of a natural family.